History

The 27 Regional and Special Delegates

In January 2020 an exploratory meeting which aimed at discussing the idea of creating a formal global alliance for albinism was held. On 26 January 2020 in Paris, France

persons with albinism from 6 continents voted unanimously to form an official alliance on albinism! The vote is a first step to promote solidarity among albinism groups around the world. The 27 regional and special delegates to this meeting elected seven people to conduct a pilot program (Pilot) that would lead to the creation of the Global Albinism Alliance (GAA).

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A technical team of four people was to function as a board. Three people were elected to the Secretariat. The Secretariat was to serve as the staff. Ikponwosa Ero, the UN Independent Expert on the Enjoyment of Human Rights by Persons with Albinism at the time, was designated the technical advisor to the technical team and secretariat. The Technical Team and Secretariat decided early in the Pilot to act together as an operational board. Ikponwosa Ero advised the Pilot Team throughout the Pilot and the assessment of the Pilot. Fifteen “regional contact points” were identified after the Paris meeting. These regional contact point positions served as a communication link between albinism groups for each region and the Pilot Team. The regional contact points played a key role in promoting a worldwide survey organized by the Pilot Team in June-July 2020.

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